Prescribing Our Future: Ethical Challenges in Genetic CounselingDianne M. Bartels, Bonnie S. LeRoy, Arthur L. Caplan Genetic counselors translate the findings of scientific investigation into meaningful accounts that enable individuals and families to make decisions about their lives. This collection of original papers explores the history, values, and norms of that process, with some focus on the value of nondirectiveness in counseling practice. The contributors; examination of genetic counseling issues serves as a foundation from which to address other ethical, legal, and policy considerations in the expanding universe of clinical genetics. |
Contents
Genetic Counseling Values That Have Mattered | 3 |
The Training of Genetic Counselors Origins of a Psychosocial Model | 15 |
The Workplace Ideology of Genetic Counselors | 25 |
When Theory Meets Practice Challenges to the Field of Genetic Counseling | 39 |
Social and Policy Issues in Genetic Counseling | 55 |
Risk and the Ethics of Genetic Choice | 57 |
Discrimination Issues and Genetic Screening | 65 |
Role of Public Policy in Genetic Screening and Counseling | 79 |
The Impact of the Human Genome Project for Genetic Counseling Services | 97 |
The Evolution of Nondirectiveness in Genetic Counseling and Implications of the Human Genome Project | 101 |
Objectivity Value Neutrality and Nondirectiveness in Genetic Counseling | 119 |
Ethical Obligations of Genetic Counselors | 131 |
Neutrality Is Not Morality The Ethics of Genetic Counseling | 149 |
Appendix | 167 |
National Society of Genetic Counselors Code of Ethics | 169 |
References | 173 |
Other editions - View all
Prescribing Our Future: Ethical Challenges in Genetic Counseling Dianne M. Bartels,Bonnie LeRoy No preview available - 1993 |
Prescribing Our Future: Ethical Challenges in Genetic Counseling Dianne M. Bartels,Bonnie LeRoy No preview available - 1993 |
Common terms and phrases
abortion affected amniocentesis applied behavior beneficence biological carriers Center challenges child choices chromosome clinical geneticists clinical genetics concept concern counselors couple cystic fibrosis deaf discussed employer eugenics evaluation fact/value distinction facts false paternity family members fetus gene genetic conditions genetic coun genetic counseling genetic discrimination genetic disease genetic disorder genetic information genetic risk genetic screening genetic services genetic testing goals Human Genome Project Huntington disease identify impact implications individuals inherited issues knowledge laboratory markers medical geneticists Medical Genetics Minnesota morally neutral non-U.S. geneticists nondirective counseling norms NSGC options outcome parents patients physicians possible practice pregnancy prenatal diagnosis present presymptomatic testing principle problems professionals question reasons reproductive decisions respect for autonomy responsible role scientific screening programs selors social Society of Genetic theory tion traditional view University value neutrality value-neutral Wertz and Fletcher
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Page xi - A living organism at any moment in its life is the unique consequence of a developmental history that results from the interaction of and determination by internal and external forces. The external forces, what we usually think of as "environment," are themselves partly a consequence of the activities of the organism itself as it produces and consumes the conditions of its own existence. Organisms do not find the world in which they develop. They make it. Reciprocally, the internal forces are not...